Overview

A platform for advocacy, publications, and awareness focused on continuity of care and therealities facing caregivers and individuals with complex needs.

This site highlights lived experience, system navigation, and the impact of the caregiver cliff.

Mason

The Issue - The Caregiver Cliff

The caregiver cliff refers to the point where care provided by family can no longer be sustained,and there is no system in place to carry that care forward.

The caregiver cliff refers to the point where care provided by family can no longer be sustained,and there is no system in place to carry that care forward.

This creates a growing gap between need and support.

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Meet Mason

Mason is 23 years old and lives at home with his family. He is impacted by autism, epilepsy, and developmental delays. Mason is nonverbal and communicates using Proloquo2Go, PECs, pointing, signs and by bringing items to others.

He has a good sense of humor if you can pick up on his nonverbal communication and his laughis contagious. Mason thrives when his environment and days are structured (2:1 care), as he enjoys the outdoors, recreational activities, and being involved in the community.

The Need

Individuals who require ongoing, high-level support are living in environments that are notdesigned to meet their needs.

Care is being managed by families without consistent, structured support systems in place tocarry it forward over time.

There is a gap between the level of care required and the environments available to support it.

Exceptional People

This reflects an idea developed over years of lived experience raising Mason and understandingthe realities of long-term care.

  • A condominium-style complex suitable for people who are severely impacted by disabilities
  • All areas of the complex are wheelchair accessible
  • 36 apartments, 837 sq ft each with no stairs in the units and individual yards.
  • No kitchens in units for safety purposes
  • Bathrooms in the units are tiled floor to ceiling and designed for clients to have privacy and dignity.  A recessed cupboard in the wall with built in spray hose to sanitize the entire space.
  • Communal Kitchen and large cafeteria area designed to support clients in learning daily life skills.
  • Upper level (2nd floor) of the communal area is for education, teaching & training of the service and care providers as well as for the residents to access learning opportunities.
  • Office administration is upstairs along with a boardroom for collaborative community meetings.

There are Many Ways to Help

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Tanner

Tanner

Tanner is 18 years old. His diagnosis of Autism and Epilepsy has created several challenges for him and his family to work through. He currently lives on an acreage with his siblings and parents where he spends most of his time. Tanner likes to go for rides either on the side-x-side, motorhome or in a vehicle...

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Mico

Mico

Having a “Mico-proof place” would be beneficial to our family, as it would provide everyone with increased comfort and joy. Having a safe and comfortable environment tailored specifically for Mico would not only benefit him, but his support workers and family as well...

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Lukas

Lukas

Time just moves along...
This is my story...
My son Lukas is smart, happy, fun & loves to be engaged. This now young man gives me a love I know I have never had. I love being his mom and wish that I could be with him all of his life; everyday a piece of my heart breaks that “the plan” for when I am gone is not in place.

Teammason2021 Foundation gives me hope and joy for his future; Lukas will have the support, interaction and opportunity to grow and be happy, fun and engaged.

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Join Team Mason

Everyone deserves to live in a home where they can achieve their fullest potential. There are thousands of individuals severely impacted by disabilities.

You can help us make a difference.

Contact Us

Tanner

Tanner is 18 years old. His diagnosis of Autism and Epilepsy has created several challenges for him and his family to work through. He currently lives on an acreage with his siblings and parents where he spends most of his time. Tanner likes to go for rides either on the side-x-side, motorhome or in a vehicle, he likes to watch videos on his iPad and be involved with what is happening around him. His communication is limited to some yes/no responses, verbally spelling, some typed and physically showing those around him what he needs/wants. 

Tanner is affected by his diagnoses as he has a restricted diet which is difficult to maintain without full support. Challenging behaviors can arise from changes that he cannot control such as sleep disruptions, which means he wakes up anywhere from4:30am to 6am. Tanner also requires assistance with his daily living skills as well as being monitored for his personal care. He doesn’t do well around others unless they have an established rapport with him and community access is an area we continue to work on as it can be unpredictable for all involved. Tanner adores his family as they adore him but it is also lots of work and above and beyond expected roles as his family dynamics are changing and siblings are growing up. A private home would be incredible for someone like Tanner because he would have some freedom with support and not overwhelmed with a group living situation.

Mico

Having a “Mico-proof place” would be beneficial to our family, as it would provide everyone with increased comfort and joy. Having a safe and comfortable environment tailored specifically for Mico would not only benefit him, but his support workers and family as well. Having support workers who are sensitive to his needs allows Mico to live a joyous life, and their jobs would be made simpler with the help of a properly structured home environment. Mico’s mood greatly impacts the individuals around him, so if he is happy so is everyone around him. Mico’s family greatly value his safety and pleasure, and believe that the plan to build a home for his needs would provide him just that.