Defending Disability Rights in Alberta - Click here to read our legal brief the ADAP & CDB Clawback
Jenn Thompson is caring for both her child and her mother — while navigating a system with no coordinated support.
These are real, out-of-pocket costs:
For two years, Jenn covered essential care costs herself while navigating delays, conflict, and system gaps. Now, those costs are compounding.
At the same time:
The caregiver becomes the system.
👉 Click here to contribute to Jenn’s GoFundMe and help cover real caregiving costs
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Are you trying to access PDD in Alberta and were denied due to IQ?
We are collecting real, anonymized data to document the gap between eligibility criteria and actual support needs.
Many individuals require daily support to live safely and function—but are excluded based on a score that does not reflect real life.
This form is:
Your response helps build evidence to support meaningful system change.
👉 Fill out the form: PDD Data
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Mason Standard of Care™ — Formal Framework Overview
This framework was developed based on longitudinal system evidence and real-world coordination across disability, health, and housing systems.
It defines the minimum conditions required to ensure care is stable, aligned, and responsive — before crisis occurs.
This is not a program. It is a system-level standard.
Full framework and implementation model available for policy briefing.
Developed March 21, 2026
Kristina Koivisto — TeamMason2021™
© 2026 All rights reserved
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Thousands of Canadians with complex disabilities rely on family caregivers Source
Fragmented systems with no coordination Source
When that caregiver is gone Source
there is often nothing ready to replace them.
This is the continuity of care gap — not future, current Source
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