System Reality

The Real Cost of Being a Sandwich Caregiver

Jenn Thompson is caring for both her child and her mother — while navigating a system with no coordinated support.

These are real, out-of-pocket costs:

  • $15,000 legal fees (upcoming case conference)
  • $120/month for 2 years for essential supplements
  • $4,800+ paid personally for dentures
  • Ongoing credit card debt and interest
  • $1,000+ in interest in the last year alone

For two years, Jenn covered essential care costs herself while navigating delays, conflict, and system gaps. Now, those costs are compounding.

At the same time:

  • Care needs are increasing
  • Support is not
  • The system is not coordinating any of it

The caregiver becomes the system.

👉 Click here to contribute to Jenn’s GoFundMe and help cover real caregiving costs

Image: Generated using AI.

Start Time:
Apr 20, 2026 2:43 PM
End Time:
Jun 30, 2027 2:43 PM
Location:
Calgary, Alberta

PDD Access in Alberta – Data Collection

Are you trying to access PDD in Alberta and were denied due to IQ?

We are collecting real, anonymized data to document the gap between eligibility criteria and actual support needs.

Many individuals require daily support to live safely and function—but are excluded based on a score that does not reflect real life.

This form is:

  • Anonymous
  • Quick to complete
  • Focused on real-world impact

Your response helps build evidence to support meaningful system change.

👉 Fill out the form: PDD Data

Image: Generated using AI.

Start Time:
Apr 20, 2026 11:35 AM
End Time:
Aug 1, 2026 11:35 AM
Location:
Alberta

Publication

Mason Standard of Care™ — Formal Framework Overview

This framework was developed based on longitudinal system evidence and real-world coordination across disability, health, and housing systems.

It defines the minimum conditions required to ensure care is stable, aligned, and responsive — before crisis occurs.

This is not a program. It is a system-level standard.

Full framework and implementation model available for policy briefing.

Developed March 21, 2026
Kristina Koivisto — TeamMason2021™
© 2026 All rights reserved

IMAGE: Generated using Chatgpt AI.

Start Time:
Apr 14, 2026 12:39 AM
End Time:
Sep 30, 2028 12:47 AM
Location:
Alberta

#FSCDilemma

Alberta approved the funding.
Families are still waiting.

  • Funding increased +34%
  • Families served increased only +21.7%
  • Thousands remain approved—but uncontracted

This is not a funding problem.
It is a delivery gap.

Auditor General findings (2022 link & 2025 link ) confirm:
Families are being deemed eligible—then left waiting years for actual support.

➡️Connect with Jenn Thompson and access her advocacy work through her Facebook page, where the Parent Partnership Project is shared within a private group offering tools and guidance to help families navigate the FSCD waitlist and move toward receiving approved services.

👉 Share your experience with FSCD-funded specialized (therapy) services through this anonymous FSCD Specialized Service Delivery Survey

Start Time:
Mar 23, 2026 11:37 AM
End Time:
Jul 1, 2026 11:37 AM
Location:
Alberta Based Advocacy